There’s nothing worse than being in pain and feeling completely exhausted all at the same time. Again, i’ve slept 20+ hours and once i’ve woken up I feel like I’m trying to run under-water whilst just walking around and making food.
Anytime I move one part of my body will crack, or the other will go weak and I lose my balance. I’m on 10+ tablets a day that aren’t doing an awful lot anymore and I’m STILL waiting to see Rheumatology.
The one thing that I want more than anything else is a magic pill, a cure, something that will get me back.
Being Chronically sick and in continuous pain is the worst thing that can happen in your life-time, no matter what age you are.
I wouldn’t wish what I go through on my worst enemies, it is the worst to be sick and young. Especially when you’re being told you won’t go into remission.
People with Ehlers-Danlos, ME, PoTs, Fibromyalgia and any other invisible illness are subject to abuse, being misunderstood and being targeted. All we want is help and support, thats all we’ll ever ask for. Maybe a cure… 😉
Please don’t dismiss us, and just… be there for us.
It’s been a very very rough week.
This picture shows me when i’m in agony. It may not make you comfortable to see me like this, but this is what my life is like.